|
|
Chronic Granulomatous DiseaseA Guide for CGD Patients and their Families |
Thirty years ago when chronic granulomatous disease (CGD) was first recognized, most of the children who had inherited the illness died before they reached their tenth birthday. Thanks to advances made in diagnosis and treatment, most people with CGD can now expect to live into adulthood. Some of the first patients diagnosed with CGD have completed their schooling, hold jobs, are raising families, and are carrying on relatively normal loves.
The National Institute of Allergy and Infectious Diseases (NIAID), a component of the National Institutes of Health (NIH), conducts and supports research on a wide range of allergic, immunologic, and infectious diseases. NIAID doctors and scientists at the NIH Clinical Center in Bethesda, Maryland, are continuing to search for effective treatments for immunologic disorders such as CGD. This booklet is designed to answer questions that m is designed to answer questions that many CGD patients and their families have asked.
CGD Questions
What is chronic granolumatous disease?
What types of infections are common in CGD?
How do these infections occur?
Can CGD affect the growth and development of children?
What are the treatments for CGD?
How can a patient help prevent these infections?
How does CGD affect a person's quality of life?
Can CGD patients have children?
What about emotional strain CGD places on patients and their families?
What are researchers finding out about CGD?
What other information is available?
U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICARTMENT OF HEALTH AND HUMAN SERVICES
Public Health Service
National Institute of Health
National Institute of Allergy and Infectious Diseases
Division of Intramural Research
Prepared by the NIAID
Office of Communications