What other information is available?

Many CGD patients and their families find it beneficial to keep informed about the advances made in understanding and treating CGD. The following organizations and publications may be helpful:

• Laboratory of Host Defenses (LHD) patient information line.
  Toll Free Number: 1-888-827-0111
  

• The National Organizations for Rare Disorders (NORD provides newsletters, computer databases, and other information sources for a number of diseases including CGD. NORD's address is PO Box 8923 New Fairfield, Connecticut 06812. 1-800-999-6673

• A newsletter and publications on immune deficiency diseases are available from the Immune Deficiency Foundation. PO Box 586 Columbia, MD 21045

• "The Immune System: How It Works," a booklet designed to help members of the general public understand the complexities of the immune system, can be obtained free by calling or writing the NIAID es of the immune system, can be obtained free by calling or writing the NIAID Office of Communications: 1-301-496-5717 Building 31, Room 7A-50 National Institutes of Health, MD 20892

• Books on coping with chronic illness may be helpful and can be obtained from the public library.

• Mr. & Mrs. Alan M. Hurley (Mary)
  Chronic Granulomatous Disease Association, Inc.
  2616 Monterey Road
  San Marino, CA 91108-1646
  Tele: (818) 441-4118
  

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National Institute of Allergy and Infectious Diseases
Division of Intramural Research
Prepared by the NIAID
Office of Communications
the NIAID
Office of Communications