The CGD Cafe

[Mary Hurley]

Hi,

Thank you for your interest in CGD!

The CGD Association began in 1982. Currently there are over 600 CGD patients on our database. We work with other CGD groups around the world. We do not have meeting since it is so rare, but encourage those that have CGD to meet at the Immune Deficiency Foundation's conference that is held every two years. The next one will be in St. Louis in June 2007. We had a very good turn out in 2005.

Many CGD patients go to the National Institutes of Health (NIH). There are also other good CGD research centers/hospitals in the U.S.

I would like to communicate further with you, but unfortunately my computer has been down for c. 1+ weeks. I'm hoping to get it working sometime this week. I would like to encourage you in any way possible in your research of CGD.

Mary Hurley